Who else has a rare genetic disorder? hands?

knumpify

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Feb 15, 2008
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To get the ball rolling, I have xeroderma pigmentosum [http://en.wikipedia.org/wiki/Xeroderma_pigmentosum]. I never leave the house without sunscreen less than SPF 100. I burn waiting for the bus, I work the night shift. If I'm out in the sun for more than 20 minutes, I blister and my skin starts to melt off. not pretty. I am pretty lucky though, no scales, it's not an extreme case, I can still get some sun and live, I have pigment in my hair, but not my eyes.

so, that's my fun story, anyone else out there with oddities?

EDIT: fixed the link, it actually goes to the wiki article now
 

ayuri

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Sep 11, 2009
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i have no clue what you mean by hands but i have nothing that uncommon.
 

Kpt._Rob

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Apr 22, 2009
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The only genetic disorder I have (that I know of) is a bad case of restless leg syndrome... and that's not really all that rare at all.
 

Lucifron

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knumpify said:
Damn, the wikipedia-article was pretty harsh. You don't expect to die prematurely or something such, right?

I don't have any genetic disease myself, but my neighbor's two daughters have some kind of brittle bone disease. They're about 10 years old, and both have broken all manner of bones (usually fingers and arms) in excess of 30 times.
 

Nihlex

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I'm allergic to meat, don't know if that counts but its not very common I believe.
 

Lord_Coinage

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Well, I somehow managed to get all the bad-looking genes I could've possibly gotten from my family. I suppose that's pretty improbable, but nothing outstanding.
 

Deef

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Kpt._Rob said:
The only genetic disorder I have (that I know of) is a bad case of restless leg syndrome... and that's not really all that rare at all.
Same bro, sometimes I find it amusing though. You?
 

knumpify

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Mortagog said:
knumpify said:
Damn, the wikipedia-article was pretty harsh. You don't expect to die prematurely or something such, right?

I don't have any genetic disease myself, but my neighbor's two daughters have some kind of brittle bone disease. They're about 10 years old, and both have broken all manner of bones (usually fingers and arms) in excess of 30 times.
nah, i'm already 20, so I'm set. my doc says i'm fine for now.

Nihlex said:
I'm allergic to meat, don't know if that counts but its not very common I believe.
Totally counts! it's all kinds of suffering there. I can't imagine my life without bacon

Rylot said:
Spinabifada for me.
Owch,
 

Liham

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Apr 17, 2009
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I have something similar to epilepsy which is that i cannot be still, I will just twich, so i am in constant motion. it's odd really.

No its not ADD, ADHD or terretes.