Connective Tissue disease help

[Yabba]

So, I was diagnosed with ITP a few years ago, which means I have low platelet counts(this prevents me from playing contact sports or doing something that might hurt my head). I also have flat feet, and extremely flexible joints(I can pull my index finger well beyond 90 degrees with my palm face down). I tried looking it up, I found a connective tissue disease called Marfan's syndrome, but that doesn't explain the ITP but other connective tissue diseases do, but they do not explain the flat feet. Does anybody know of a disease that accounts for all of these symptoms?

 

[DoPo]

Check with a doctor. Seriously. Random people on the Internet are not the best source of medical information.

 

[Illesdan]

Get a referral from your primary doctor to a rheumatologist; they are doctors who specialize in joint disorders and can prescribe the correct drug therapy if needed for your condition.

Hope it all works out.

 

[renegade7]

I'm not a doctor, but I pretend to be one on the Internet...

Seriously, you have no way to evaluate our qualifications and to confirm that any medical advice we give you is sound. Only a doctor can and should give you that kind of advice. If you don't know a rheumatologist or specialist with this kind of condition, a GP can refer you to one.

 

[Wary Wolf]

I'm looking at Marfan on Google, which I assume you did too. It presents in early childhood mostly. Its likely you would have suffered rather severe complications before now and would have resulted in hospitalization and a proper diagnosis.

Your GP will be able to tell you with much more accuracy than anyone online can.

Flat feet and double-jointedness may not account for anything other that genetics.

Here's some good news about your ITP though. It is typically an acute condition. Meaning it can and probably will go away with medical assistance. Possibly only becoming problematic when you suffer from things like a cold or flu.

As everyone here has said; SEE YOUR GP!

They may be able to give you a clean bill of health, or give you means to get on top of your ITP. Typically through medications, which may be transitory. Or a long-term specialist if needed.

If you can own your ITP, you will be able to better manage it, and limit its impact on your life!

Seriously. SEE YOUR GP.

Go. Book an appointment. NOW DUDE.

GEEEE PEEEE!

 

[1981]

Sometimes patients can give more qualified advice than doctors. If you have specific symptoms or signs (in your case it's easy to demonstrate) then the first thing you should do is see a doctor. If they dismiss your concerns you need to start looking into it on your own.

 

[Wary Wolf]

Sorry, just going to moderately disagree with that. I think it is more prudent to seek a second opinion if your GP is dismissing your concerns, as a proper GP won't 'dismiss' concerns, rather talk you through them and explain to you *why* they don't think you have such and such a condition. If two GPs suggest your concerns are unwarrented, they may be right. Or as mentioned. Seek a rheumatologist if you still don't believe them.

Also, help seeking on you own should be done through professional websites, such as organizations who focus on the disease and offer support. I do agree with 1981, however, on that if you feel that there is something wrong with your body, you are probably right, as you know it best.

 

[1981]

It depends on where you live. Around here, public healthcare has been on the decline for years. You can't get a second opinion because if you've seen one doctor, you've seen them all. Going to a private practitioner is expensive and you have to do a lot of research to make sure it's worth it.

Also, help seeking on you own should be done through professional websites, such as organizations who focus on the disease and offer support.

True.

 

[Wary Wolf]

It depends on where you live. Around here, public healthcare has been on the decline for years. You can't get a second opinion because if you've seen one doctor, you've seen them all. Going to a private practitioner is expensive and you have to do a lot of research to make sure it's worth it.

Also true.

Just wanted to keep options open for OP. I also don't want to be advocating one thing or another either, because this is a bit of a minefield of a topic. So much so, that I'm half tempted to report OP. My concern is if I say one thing and it turns out to be another, I will have caused harm, possibly opening up litigation / ban hammer on myself.

Still, it's been almost a fortnight since OP checked this forum. I assume that they would have responded / sought help by now. In which case I hope they got good news.