Issue at hand, my hand.

Recommended Videos

SinisterGehe

New member
May 19, 2009
1,456
0
0
Pardon then pun on the topic title.

To understand what I am asking here, you need to listen (read) my story, well part of it to be specific, a segment composed of my last 1½ years of life.

1½ years ago I started to notice pain on my right hand after using it for a while in complicated tasks or after long period of times, I went to a doctor since I needed my hand to do my school work, papers, exams and homework - the usual stuff and for my hobbies: Drawing, painting art in general and music; piano, percussion - mallets primarily, I even got letter of recommendation to study mallets if I ever felt like studying them in my local Conservatorium. Doctor told me to take it easy, avoid stress on it - and so I did, I even quited gaming for 3 months.

I bet you can guess my hand didn't get better since here I am asking help, but anyway, I will continue the story for a bit more.

After few months during the winter of 2009-2010 my hand took turn to worse, it started to have constant pain on it, primarily on my fingers and fist, 5th and middle finger started to cramp together. I of course sought medical attention once more. After a doctor and another and one really bad attempt to use medication to control the symptoms, the drug was successful at controlling the pain, but the side-effects were way too dramatic.

Next summer, I was still in pain due to my hand, this summer was to be my last summer as a percussionist, my ability to draw and write by hand were drastically worse compared to what I used to be - my ability and skills to draw were still there my hand just didn't function as I commanded it to, hence why this summer was to be my last as a percussionist. I had earlier that year started to use mini-laptop to do my schoolwork on.
I was happy I had chosen myself a secondary instrument earlier - a French horn.

After summer my pain started to grow much more sewer, the cramps became more wide-spread and much worse. I forced myself to draw regardless of the pain and discomfort, due to doctors advice to keep my hand active and partly because of my desire - addiction to work with art, to create visual objects with aesthetic value. My only real enjoyment that I still had was games, gaming - I loved it, I had played games since I was 4.
I started to have something called "Pain seizures"* (*Loosely translated from Finnish word "Kipukohtaus"), basically I had a pain attack which caused my hand to cramp extremely badly, 5th 4th and middle finger cramped so that they just pointed straight forwards. The pain was extreme, I could only describe it as pure, extreme, absolutely pure refined pain, it crippled me, I couldn't attend school if I had one, the whole event starting from its pre-symptoms to its "After shock" lasted up to 3 days.
Before holidays I got myself in to specialist pain treatment clinic, where I got myself a medication, with some side-effects but they keep the pain bearable.

holidays passed, day by day.

While ago the cramps reached their new extreme, my shoulder started to pull down, my whole right torso started to collapse on itself, my hand chest muscles started to pull my hand to front of my torso, causing my shoulder blade to stick out of my back, causing so called "Angels wind" on my back. Medication is not enough anymore to keep the pain in control and doctor doesn't want to increase the amount of medications I take, since the treatment is long term - up to my whole life. Now the pain and dysfunction of my hand have caused me to give up on gaming. I am/was extremely successful healer in quite good WoW guild, but my hand just couldn't keep with the amount of healing I should be able to sustain to keep the raid alive, I decided to call myself off from raiding due to medical reasons and found myself a replacement player. I couldn't play FPS games my hand just isn't fast enough. Minecraft, barely my hand just doesn't like the amount of clicking and button pushing required to do things.

I forgot to add that; Doctors are still clueless of what this is, it is a case of "It isn't this, but it ain't compeletely that either." I am in waiting line to meet 2 Finland's top specialist on this type of neurological conditions.

So what my question is?
What would I do? My hand is taking everything I enjoy away from me, Everyday is a pain, boredom is extreme. I have lost almost everything I enjoy. Pains keeps getting worse, along with the cramps, depression is getting grip on me. TV offers nothing to me, I read literature, but don't enjoy it due to me having hard time reading - I have always had.
- So, what should I do?

Excuse the language and grammar, I am not native to English.
 

dmase

New member
Mar 12, 2009
2,117
0
0
I couldn't imagine that your docters haven't thought of this but my mom knows somebody with something that would do the same to their arm and cause spasms of pain.

http://en.wikipedia.org/wiki/Multiple_sclerosis

That's one of those stories that is just really sad. I'd give a look into doing some writing specifically expanding your story making it in depth, if you don't have any pain while typing that is.
 

SinisterGehe

New member
May 19, 2009
1,456
0
0
Aylaine said:
I would wait to see those doctors, and explain all your symptoms very clearly. Other then that I don't have any other suggestions. Questions like these cannot be answered by regular people, you need a physical examination of your arm/hand and a diagnosis from a certified doctor. :x
If you read the the whole story you would have noticed that I have been to doctors, quite few of them al specialist in their respective filed, the general practicer though I had stressed muscles. These 2 specialist I am going to are my 6 and 7th specialist I been to this far.

Basically what I am asking is what could I do. I got barely any content in my life anymore, just pain from day to day and yet to another day, mix that with boredom and you got a mix of absolutely dull life.
 

SinisterGehe

New member
May 19, 2009
1,456
0
0
Aylaine said:
SinisterGehe said:
Aylaine said:
I would wait to see those doctors, and explain all your symptoms very clearly. Other then that I don't have any other suggestions. Questions like these cannot be answered by regular people, you need a physical examination of your arm/hand and a diagnosis from a certified doctor. :x
If you read the the whole story you would have noticed that I have been to doctors, quite few of them al specialist in their respective filed, the general practicer though I had stressed muscles. These 2 specialist I am going to are my 6 and 7th specialist I been to this far.

Basically what I am asking is what could I do. I got barely any content in my life anymore, just pain from day to day and yet to another day, mix that with boredom and you got a mix of absolutely dull life.
I'm aware, but the last 2 you mentioned were basically the best that your area has to offer, so I think they would be the safest bet, not people here who aren't certified on dealing with that sort of thing. In terms of what you should do, I can't say. If the pain is constantly making life difficult, there isn't a whole lot you can do until you get it sorted out. Even if you resist the pain and do things you want, I don't think it would be the same, and it would be much harder. I would just try and get it diagnosed and fixed/recover from it as soon as possible. :x
It struck me finny, just a detail, you couldn't know it, but anyway. The last two specialist who I am in queue for are in my home region, part of the same medical facility that I am getting treated in already. TYKS - Turun Yliopistollinen Keskus-sairaala. And my current neurologist works with the other neurological specialist, just the queues for him are long, because he is THE neurologist when it comes treating these type of cases.

What I am most worried is that, I can't draw, write, play piano, -games, I can barely focus on playing F-horn because of the pain. So what should I do. Sit around and watch "let's play -" videos from youtube for the next 2½ months it takes me to meet the specialist.
 

Yuno Gasai

Queen of Yandere
Nov 6, 2010
2,586
0
0
Aylaine has basically covered the gist of what I was going to say.

If you want some practical advice, I'd advise you to make a list of all of your symptoms. It can be hard to remember everything when you're actually face to face with a doctor or specialist, so having a list that you can refer to and/or show them right off the bat will definitely help them to diagnose you a lot faster, and potentially more accurately.
 

Zaverexus

New member
Jul 5, 2010
934
0
0
I don't know how much we Escapists can do to help except tell you that everyone here is rooting for you. Everyone who reads this is hoping that you are able to recover soon, I personally wish you the best of luck in seeing those specialists and I hope they are able to help.
In the meantime -before you see them, that is- you say/seem to be able to type; have you considered writing stories? It may not be the kind of visual art like your drawing or painting that you're used to but it is art all the same, with the power to move and entertain others. It will give you something to think about besides
SinisterGehe said:
a mix of absolutely dull life.
It exercises your creativity if even just until you are able to use your hand effectively again.
I'm an avid writer myself too, so if this sounds interesting you should message me and we could E-mail some stories back and forth for ideas and peer review.
You could always write music as well, I play a couple instruments and love music so we could discuss that as well if you want.

The Escapists are here for you, best of luck